Sr. Manager, Patient Advocacy

Mavericks Wanted

When was the last time you achieved the impossible? If that thought feels overwhelming, you might want to pause here, but if it sparks excitement...read on
 
In 2015, we pioneered a “moneyball for biotech” approach, pooling projects and promising early-stage research from academia together under one financial umbrella to reduce risk and unleash innovation. This model allows science and small teams of experts to lead the way. We build bridges to groundbreaking advancements in rare disease, and develop life-changing medicines for patients with unmet needs as fast as humanly possible. 
 
Together we define white space, push boundaries and empower people to solve problems. If you're someone who defies convention, join us and work alongside some of the most respected minds in the industry. Together, we'll ask "why not?" and help reengineer the future of biopharma.

What You'll Do

The Senior Manager of Global Patient Advocacy is responsible for engaging patients, families, caregivers, and community advocates throughout the drug development process to understand their challenges and desires and to adapt our efforts accordingly. This position reports to the Senior Director of Global Patient Advocacy and will ensure productive and enduring relationships and communication strategies with patient advocacy organizations and community leaders. This individual will collaborate with key internal/external stakeholders to develop and support educational programming and implementing communication strategies to share developed resources, program updates, and other relevant information with the patient community. This position will work in tandem with the Patient Advocacy and Medical Affairs teams on multiple development programs at various stages, with a focus on hypoparathyroidism.

Responsibilities

• Inspire a patient-first mentality by communicating the “voice of the patient/caregiver” to internal teams and incorporating patient stories, imagery, and unmet needs in company activities and materials
• Act with honesty, integrity, and transparency in collaboration with patients and patient organizations
• Establish and/or further develop and continuously strengthen advocacy relationships with patient advocacy organizations globally through compliant and thoughtful engagement and alignment on company priorities
• Develop and implement patient advocacy communication platforms and activities by collaborating with internal teams that include development, operations, medical, legal, compliance, communications, and commercial
• Support the planning and organization of external meetings and events according to requirements, target audience, and objectives
• Provide logistical and operational support to the grant and sponsorship processes
• Manage financial and reimbursement activities to support meetings with external patient and medical community members (ie, Community Advisory Board and Task Force Meetings)

Where You'll Work

This is a U.S.-based remote role that will require quarterly, or as needed visits to our San Francisco Office.

Who You Are

• Bachelor’s degree (or higher) in a relevant life science field is required; a post-graduate degree in counseling, social work, genetic counseling, public health, nursing, pharmacy, or life sciences is strongly valued
• Experience in rare disease or endocrine disease is preferred
• A minimum of 2 years in patient advocacy/advocacy relations, or a similar function in an industry role, is preferred
• Demonstrated ability to build relationships with patient advocacy organizations, professional associations, or other stakeholders is required
• Communicative ability in a second language would be highly valuable
• Ability to travel up to 30% (often on weekends) is required

Rewarding Those Who Make the Mission Possible

We have high expectations for our team members. We make sure those working hard for patients are rewarded and cared for in return. 

Financial Benefits:

• Market leading compensation 
• 401K with 100% employer match on first 3% & 50% on the next 2%
• Employee stock purchase program
• Pre-tax commuter benefits
• Referral program with $2,500 award for hired referrals

Health & Wellbeing:

• Comprehensive health care with 100% premiums covered - no cost to you and dependents
• Mental health support via Spring Health (6 therapy sessions & 6 coaching sessions)
• Hybrid work model - employees have the autonomy in where and how they do their work 
• Unlimited flexible paid time off - take the time that you need
• Paid parental leave - 4 months for birthing parents & 2 months for non-birthing parents
• Flex spending accounts & company-provided group term life & disability 
• Subsidized lunch via Forkable on days worked from our office

Skill Development & Career Paths:

• People are part of our growth and success story - from discovery to active drug trials and FDA pipelines, there are endless opportunities for skill development and internal mobility
• We provide career pathing through regular feedback, continuous education and professional development programs via LinkedIn Learning, LifeLabs, Spring Health & BetterUp Coaching
• We celebrate strong performance with financial rewards, peer-to-peer recognition, and growth opportunities